For children and adults with medical complexity, and their families
Medical complexity care, mapped for your family.
Complex care clinics, children's hospitals, home nursing, medical day care, equipment and family support in every state. Plus the tools families use to keep it all together.
Build your Care Map
Tell us where you live. We pull together the care teams, programs and family help in your state, with what is closest to you first. Download it and keep it.
Narrow it down (optional)
Your Care Map: the whole team, in one download.
- 36,931medical complexity listings
- 1,567children's hospitals
- 1,627complex care and specialty clinics
- 59Family-to-Family Health Information Centers
What are you searching for?
Listings come from the Disability Atlas. Guides and tools are built here, for families living with medical complexity.
Find care
Complex care clinics, children's hospitals, specialty clinics, home nursing, medical day care, equipment and more.
Going home
Leaving the hospital with a trach, a feeding tube or a ventilator. What to have in place first.
Care at home
Home nursing, medical day care, equipment and supplies, respite, and what to do when shifts go unfilled.
Paying for care
Medicaid for children, coverage whatever the family's income, waivers, Title V, insurance and appeals.
The family journey
From the diagnosis to adult life: what each stage brings and what helps.
Care binder
An emergency information form, a supplies list, a nursing hours log and a power outage plan. Saved on your device.
Your Care binder
The paperwork families keep, made easier. Everything you type stays on your device. Print it, or download a copy.
Emergency information form
One page for 911, the ER and new caregivers: conditions, medicines, devices, baseline, care team.
Devices and supplies
Every device and supply, with sizes, suppliers and when to reorder.
Nursing hours log
Hours approved and hours staffed, week by week. Proof for your case manager.
Power outage plan
Which devices need power, how long batteries last, and who to call.
Going home checklist
Everything to have in place before the first night home.
Ready before the next emergency.
An emergency information form for the ER, a power outage plan for life-sustaining devices, and a go-bag list.
The family journey
Eight stages, from the diagnosis to adult life. What each one brings, and what helps.
- The diagnosis and the hospitalOften a NICU stay or a long hospital admission. Many new words, many specialists.
- Going homeLeaving the hospital with equipment, medicines and a schedule. Training comes first.
- Building the care teamA medical home, specialists, therapists, a supply company, a nursing agency, and a care coordinator to tie it together.
- Everyday life at homeNursing shifts, supplies, appointments, insurance. And also family life.
- SchoolSchool is a right, with nursing and health plans when they are needed.
- The teen yearsPlanning for adult life starts around 12 to 14.
- Adult lifeAdult doctors, adult Medicaid, and decisions about support.
- When care turns to comfortPalliative care can help at any stage. Hospice, when the time comes, can be at home.
Who gets it done?
Supplies are late. A nursing shift is empty. A service was denied. Each problem has someone whose job it is to fix it. Our list says who to call, and what to ask for.
Who to call for what
How to read a listing
- Self VerifiedThe organization confirmed its own listing in the last 12 months.
- Confirmed ProfileConnectIDD checked it against public sources.
- Registry ListingA licensed provider from a government list that nobody has confirmed yet. Call before you rely on it.From a public registry or member list. Nobody has confirmed it yet, so call first.
Free help from families who have been there
Every state has a Family-to-Family Health Information Center, run by parents of children with special health care needs. Your Care Map lists yours.
Support for the familyClinics, care teams and networks
Check your listing, add who you serve, and become Self Verified. Free. Clinic networks can also ask about a private Atlas for their families.
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